Our year began with another storm, taking our beloved Vitoria to the hospital... Since Saturday she was agitated and tense and started to have some spasms that have been increasing over the Sunday, when we brought her to hospital. All tests came normal, without evidence of infection, therefore it seems to be a neurological crises, seizures or something similar.
She was observed during the afternoon and in evening spasms increased and became continuous and very repetitive. She was exhausted but could not sleep at all, so she was sedated. Today at 6 am she got to wake up but then went back to sleep soundly. She began to be not reactive and need little oxygen, and so she was brought to ICU for being better monitorated. The doctor believes it is still the sedative effect. They also put her a probe because the way she is asleep, she is unable to eat orally. They didn´t try to get a venous access (which it is extremely difficult). She is receiving a muscle relaxant and the neuropediatrician will evaluate her soon.
We were very shaken by this new and unexpected complication, seeing our little princess suffer with spasms and have to face hospital procedures again. We are also extremely physically exhausted because we were carrying her all the time (so the spasms became weaker). Now we do not know what will happen. We hope she recovers soon and can be medicated so that spasms do not come back. For now she needs to rest and recover from the stress experienced.
I think there is no greater pain than seeing our child suffer. And there is no greater love than the love parents can have for their child. And our promise to our little princess is that we will love her forever, and that we will always fight with her, no matter how big the challenge is, how great the pain is. We pray God to give us strength and that she can feel better. Please pray for her and for us.